ʻO ka mea pōʻino, pinepineʻole kaʻikeʻana i nā kalactosemia i nā keiki hou. Eia naʻe, ke piʻi nui nei ka maʻi o nā poʻe maʻi me kēia maʻi e like me ka maʻi i nā lā mua o ko lākou olaʻana. I ka lāʻahā o ke kaohi kūʻokoʻa o ka maʻi,ʻaʻole hiki i nā pēpē ke inu. ʻO ko lākouʻanoʻano kūpono, iʻikeʻia ma kahi lōʻihi, no ka hopena koʻikoʻi o ka naʻau - loaʻa iā lākou ka hoʻoulu o ka huhū,ʻikeʻia ka momona, ulu ka wai i loko o ka lole.
ʻO ka maʻamauʻo Galactosemia he maʻi nui,ʻaʻole hiki ke ho'ōlaʻia i keʻano e mālamaʻia ai nā maʻi maʻi, akā hiki iā ia ke hana i kahi keiki me kahi hōʻailona inoa i like me ka nohona likeʻole me kona mau pilikino maikaʻi. I kēia hihia,ʻo kahi kōkua wale nō e hiki ke hāʻawiʻia i kahi keiki,ʻo ia ke aʻo i ka hahaiʻana i ka meaʻai kūpono e pono ai no ka pēpē.
Nā kumu a me nā hōʻailona o Galactosemia
ʻO Galactosemia he maʻi olakino (congenital) ka hopena o kekahi anamaly of metabolism a hiki i ka hoʻohuiʻia o ka galactose i loko o ke kino. No ka hopena o kahi maʻiʻeha i ka galactosemia, ua nele ka hoʻololiʻana o ke kalola a ka glucose.
ʻO ka hapa nui o nā pēpē hou me ka galactosemia he kaumaha nui loa -ʻoi aku ma mua o 5 kilokani. Ma hope o ka hānaiʻana, loaʻa lākou i ka luaʻi weliweli, ai kekahi manawa ka pupule. Kūleʻa koke ka nohoʻana o nā maʻi ma muli o ka hoʻouluʻana o ke ake, ke kilo, ascites (kahiʻano e ulu ai ka wai i ka lua o ka'ōpū). Ma hope aku, hiki ke hōʻailonaʻia ka hōʻailona me ke aniani o ka lens (aiʻole cataract). Me ka lāʻauʻole, hiki ke make i nā keiki hou me ka galactosemia mai nā bactps sepsis, kahi e ulu pinepine ai i kēia maʻi. Eia nō naʻe, i nā lā hou,ʻo nā mea maʻi me nā hōʻailona mua o ke kalokōmoa e kōkua kokeʻia e nā mea lapaʻau.
Hana no ka galactosemia - heʻai maʻamau
ʻO ke kumu o ka mālamaʻana i nā keiki maʻi heʻai lawaiʻole. E hoʻomanaʻo i ka hoʻohanaʻiaʻana o ka waiū lactoseʻole ka lactose children e hoʻohana ai i ka waiū lactose,ʻaʻole eʻaeʻia nā hua laikini houʻole lactose no nā keiki hou me ka galactosemia. Ma kaʻaiʻana o ke keiki, pono pono ke pale i ka liʻiliʻi o ka waiū a me nā mea huapalapa, e like me nā huihuʻi waiū -ʻaʻole hiki iā lākou ke hoʻowalewale i ka kino o kā lākou pēpē. Hoʻohuiʻia nā mea hiki ke hoʻohanaʻia no ka galactosemia he mau memele a me ka waiūmona almond.
Eia naʻe, e hoʻomanaʻo i ka hōʻoleʻiaʻana o nā hua lapalapa e like me ka sīkeke, ka waina, kaʻaila, ka pata, a me nā huahana i loaʻa i nā kikowaena o ka waiū -ʻaʻole kēia he manawa lōʻihi. Mai kēia mau huahana, pono ka mea hoʻomanawanui me ka galactosemia e mālama i kona ola a pau, e pale i ka hōʻiliʻiliʻana i nā huahana e like me ka margarine, ka berena, nā kuʻi a me nā huahana i hoʻopauʻoleʻia, kahi eʻikeʻia ai ka hikiʻana o ka waiū. Mai hoʻonāwaliwali, hiki iāʻoe ke hoʻohana i ka nui o nā huahana'ē aʻe: nā meaʻai, iʻa, nā meaʻai, nā hua, kaʻaila hinu, nā hua, a me nāʻano meaʻai he nui.